VOLUNTEER FOR RESEARCH
We have new studies currently recruiting participants! Please see the information below and join us to help move the understanding of dystonia forward!
NOW RECRUITING: Imaging Genetics of Laryngeal Dystonia
Patients with a familial form of laryngeal dystonia
Unaffected relatives of patients with laryngeal dystonia
Patients with voice tremor
Patients with muscle tension dysphonia
We are conducting a series of studies to understand the brain and genetic mechanisms of developing laryngeal dystonia and other related disorders (voice tremor and muscle tension dysphonia), which will help identify the neural markers that determine the predictive risk of developing these disorders. You are invited to participate in this study if you have laryngeal dystonia, voice tremor, muscle tension dysphonia or are an unaffected relative of a patient with laryngeal dystonia. This study includes the an MRI of the brain, a completion of clinical and behavioral assessments, and a blood draw for genetic studies. Funding for this study is provided by the National Institute on Deafness and Other Communications Disorders (NIDCD), National Institutes of Health (NIH), R01DC011805 grant. All research procedures have been reviewed and approved by the Institutional Review Board (IRB) of Mass General Brigham.
INITIAL STUDY CONTACT AND INFORMATION FOR ALL ONGOING STUDIES
To obtain detailed information about the study and your eligibility for participation, please contact us by phone (617) 573-6016 or e-mail Simonyan_Lab@meei.harvard.edu. The preliminary screening will take approximately 20 minutes of your time. If you are eligible for the study participation, we will schedule your visit with our research team at your convenience. Upon the study completion, your out-of-town and/or local travel expenses associated with the study participation will be reimbursed, and you will receive a compensation for your time and efforts.